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Sat May 02, 2009 10:00 am |
The health food store that carries it in our town keeps it in the back, you have to ask for it. That way they make sure you know how to handle it etc. Its also safer there, its not a substance you want dropped or bumped into with a shopping cart etc. |
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Sun May 03, 2009 6:52 am |
Hello everyone..I have had SK for years and have tried everything from shaving them off to having dermat.freeze them. I am so interested in your removal system. I have so many on my back and upper torso. Is this safe for thin skin on neck and chest? Thank you so much for this site!!! |
_________________ natural strawberry blond hair, blue eyes,56,very fair skin, no wrinkles(yet) |
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Sun May 03, 2009 7:13 am |
suzyIQ wrote: |
Hello everyone..I have had SK for years and have tried everything from shaving them off to having dermat.freeze them. I am so interested in your removal system. I have so many on my back and upper torso. Is this safe for thin skin on neck and chest? Thank you so much for this site!!! |
Hi suzyIQ and welcome to the forum Glad that you found this thread.
It works well for back and torso. On thin skin you can try lower concentration first, and do a patch test, if it works you can proceed with treating entire area, and if not you can increase the concentration. If other members have experience with treating thin skin, they will chime in. |
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Sun May 03, 2009 8:10 am |
Hi again, I have read most of the post. I am from US and have access to dermatologist. They can take a lot of money...BUT...they also have good advise and are up on new treatments. My derma. gave me a prescription for ammonium lactate cream 12% for my SK. It is 15$ for a large tube and it has softened some of my small SK. It is supposed to help prevent more of the nasty little things!! She also suggested COq10. I make hole in liquid tablets and apply with lactate cream... AMAZING!! She froze several SK and I can't wait to try your method. I told her about it and she said"it will work,start small and do one at a time,use weak solution and work up,protect skin around SK and go slow".'I told her about your site and she looked at it. She was impressed. Also Retin A is great for facial SK prevention. I am so excited about the wonderful things you have done for all of us that have this SK creepie There is hope and I will share all I learn from her. We are all in this together.. Also Ammonium Lactate 12% cream stops the awful itching that SK brings. Hope I have helped someone.. |
_________________ natural strawberry blond hair, blue eyes,56,very fair skin, no wrinkles(yet) |
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Hopeful for help
New Member
Joined: 10 Apr 2009
Posts: 5
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Sun May 03, 2009 1:35 pm |
Hi everyone.
Well, it's been just about a month since I started my treatment, and the spraying of the SK's on my foot. (See pg 10 for full report)
I have a mixed report for this update...
Yes! It appears the SK's are either dying or dead! This is amazing! I still have some that may need more treatment and others that are still coming off, but the skin is much smoother! In this, I am encouraged!
On the downside...I did over do the spraying! Please, anyone reading this...Go slow! I do not recommend spraying more than 2X before allowing the skin to fully heal. Then, repeat if necessary. It's been over 3 wks since my last spray (last in the set of 4) and my skin is still healing, to varying degrees. Most of my foot is still red and blotchy, dry, and itchy but healing and I am hopeful will return to normal in time and with continued moisturizing. However, between my toes, is another story. When I sprayed my foot, I simply hung it over the side of a tub and sprayed, not protecting any parts of my foot, but spraying freely. Doing this repeatedly proved to not be so smart. lol The H202 collected in the webbing between my toes and sat there...Most of my toes have healed, but the area between my large toe and the next. It's still quite scabby and very painful as any movement cracks open the scabs. I apply Neosporin to it repeatedly through out the day to keep it soft and healing, but well, it's still not there yet. I have no doubt it will heal and be fine, but while I have been able to avoid it, infection has been a concern. Just please, be careful!
On another note...
I got a bonus out of all of this as well! The heals of my feet had thick, cracked callouses on them. I had tried all the normal foot moisturizers, creams, soaks, buffers, PedEgg, etc and nothing seemed to help for long...When I was doing these treatments, the H202 got into those cracks and stung like a bee, but the result has been that over the weeks, all of that old built up calloused skin is gone! It just sort of cracked and fell off in bits and pieces! No pain, like there can be in callous removal. The skin under was not raw or sore...It worked beautifully! Now because of what I am experiencing with my toes, I certainly would not recommend soaking your calloused feet in this, but perhaps applying it directly to the heal with a paintbrush...Be prepared for the sting though!
Was it worth it?
Yes...I believe at this point that it was.
I'm still healing and will update in another few weeks, but it looks like mission accomplished!
I will say when I continue to do my other foot or other areas of the body, I will try less extreme methods of application and go slower...
Thanks again to all those who continue to contribute here. |
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Sun May 03, 2009 11:15 pm |
Hopeful, that is good news! I was a little worried that you did too much at once, glad it will be ok. Its great its all coming off! Even if it only gets some of it, some is good!
Maybe you could paint little wells of vaseline around your good skin, so it won't get anything on it.
That is great news about the callous!
I was wondering about it myself--- Its dead skin, after all...I never used to get callouses. It must be an age thing. I can't get mine to stay off! I am going to try it now too!
In another thread, someone wrote about using Hyaluronic Acid for that--that she was using it for something else, and by accident found out her feet were soft!
I had wanted to buy some anyway for arthritis, so I am going to watch and see if it also helps with the callous and dry skin.
I am trying another experiment with the H2o. I had a very sore toe, and thought it was because I was wearing tight shoes, and that my toenail was cutting my other toe.
But that's not the case. After investigating, it appears to be a planters wort. I am not totally sure, but it looks just like photos I found on line. A colorless spot. Sort of like a callous.
I keep putting H20 on it, hope it works. Kinda creepy. |
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Mon May 04, 2009 6:14 pm |
SuzyIQ - I was very interested to read about your derm's comments...thank you so much for sharing the info. What strength CoQ10 do you use? Also, when your derm suggested using a weaker solution of the 35% Hydrogen Peroxide, did she tell you how to prepare it?
Hopeful - It was good to hear from you again with your update. I had a feeling it was going to take a bit of time for the healthy skin on your feet to heal. Burns heal from the inside out, so it takes awhile. You might want to try some pure aloe vera to relieve your skin and promote healing. Maybe slather it on your feet and between your toes before you go to bed.
SansSouci - I had plantar's warts on the bottom of my foot when I was in high school. They were exactly as you describe - like a callous. The dr. said I probably picked it up in the gym locker room. I have my suspicions that the microbe that caused the warts is also responsible for my SKs. I had 5 of them that developed over a period of time: a big one a little smaller than a dime and 4 smaller ones around it. The dr. who burned them out said it was important to remove the large "mother" wart because that's the source of the smaller ones. I would be interested to hear if the 35% HP works for you. It's also possible that what you have on your toe is a "corn." These also look like a callous and can be really painful, but they don't multiply-and-divide like warts. They are caused by the anatomy of your foot not agreeing with your shoes...a common issue for women!
As for heel callouses, I get those, too. We had a long cold winter here and one of my heels started to get really crackly. I had recently started using the Glytone KP Kit - a relatively high glycolic body wash and body cream - and after the 2nd time I used it, slathering the cream on my heels pretty thickly and putting on socks, my heel peeled like crazy. All the crackly stuff came off within a day or two. I think this Kit, while it's intended for keratosis pilaris which I thankfully(!) don't have, is a good basic maintenance product for those of us who have the tendency to grow things on our skin. I wish I had discovered this kit long ago. |
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Mon May 04, 2009 6:40 pm |
suzyIQ wrote: |
... I told her about your site and she looked at it. She was impressed. Also Retin A is great for facial SK prevention. ... |
Finally found a derm that is interested in helping patients. Most people arrive on this thread because their derms are total opposite. Hopefully your derm will be able to help even more people with info from this thread, and spread the word around.
Hopeful for help wrote: |
... Was it worth it?
Yes...I believe at this point that it was.
I'm still healing and will update in another few weeks, but it looks like mission accomplished!
I will say when I continue to do my other foot or other areas of the body, I will try less extreme methods of application and go slower...
Thanks again to all those who continue to contribute here. |
Hopeful - great that you eventually see positive outcome, and good luck with continuing healing!
Jax wrote: |
... I had recently started using the Glytone KP Kit - a relatively high glycolic body wash and body cream - and after the 2nd time I used it, slathering the cream on my heels pretty thickly and putting on socks, my heel peeled like crazy. All the crackly stuff came off within a day or two. I think this Kit, while it's intended for keratosis pilaris which I thankfully(!) don't have, is a good basic maintenance product for those of us who have the tendency to grow things on our skin. I wish I had discovered this kit long ago. |
Jax - looks like one more weapon to keep our skin clear. Keep us posted! |
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Mon May 04, 2009 7:07 pm |
I had recently started using the Glytone KP Kit - a relatively high glycolic body wash and body cream - and after the 2nd time I used it, slathering the cream on my heels pretty thickly and putting on socks, my heel peeled like crazy.
Oh! Where did you get that kit Jax? I want to have pretty feet! Thanks for the info on the planter's too. I must have caught it at the gym. Ew.
I have been thinking, after reading the thread on the 302 products, that I might not want to use my peels on my face anymore. I have about 2 oz of jessner's left, and a tiny bit of TCA and was thinking it might be good on heels. Once I used 70% glycolic acid. It was ok..
Also tried some heel lotion with urea in it. I had read that diabetics use it, as they have to keep their feet soft. It was just an "eh" for me.
I have the pedi egg. Its ok, but my feet are still kinda rough. I want to get that expensive file people rave about, the $35 one.
I don't have any more of the SK's. The H20 got rid of them. I only had 2 though. The rest were moles. |
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Mon May 04, 2009 10:38 pm |
SansSouci - I got the Glytone kit at skincarerx.com I use the body wash in the shower, especially on my back and torso where I'm prone to SKs, and it is helping exfoliate my skin better than any other thing I've used. I have no way to apply the body cream to my back, but it also works very well everywhere else I apply it except that it's kinda thick, so not a pleasure to apply...you have to rub a lot to get it absorbed. It doesn't remove SKs so far but maybe it will prevent others from taking hold.
Since most callous treatments contain an acid, I'd bet your Jessner would do something on your heels. I once had a pedicure where the tech was intent on getting my heels smooth - he put 3 treatments of salicylic acid on them and pumiced in between each treatment. My heels were like a baby's bottom. This was on an out of town trip or else I'd be going to this guy once a month which is how long it lasted. I also use a microplane like your PedEgg but you have to use all these tools several times a week to keep on top of it. All this maintenance is such a drag! |
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Tue May 05, 2009 12:29 am |
Thanks, Jax!
Hopeful--did it take the entire month for your foot to heal from that spray? I know I already said this, but I was really scared for you, I thought maybe you even burned past your skin!
Its like battery acid, or dry ice! I really, really think people should only carefully barely touch the spots and the spot only, and not let it touch your regular skin at all, not even a mist! Only 3% as a mist, not 35%!
Its why they don't have it sitting on the shelves, its too dangerous! People might drink it, or spray themselves! They don't even want shopping carts to accidently run into them.
They keep it in the back, locked up, where it can't get knocked over.
It must have really hurt like the dickens...I have accidently got a tiny little bit on regular skin and it was horrible! Worse than TCA! It felt like it was burning the nerves in my fingers! A very weird burn too, not like boiling water, but down to the nerves! Almost like being electrocuted..a very weird horrible burn! That is why I was so scared, I wondered if you burned your nerves!
I can't imagine if it was still red days later, let alone weeks!
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Tue May 05, 2009 5:50 am |
I would report the doctor who said that to you. Kaiser doesn't need anyone like that working for them. I've had Kaiser in many different states and never had that type of remark. What facility and what is the doctor's name? I will report him/her myself.
When I went in some years ago about the same thing, I was given lots of information about then and how to keep them away. The doctor froze them that day, but gave me instruction for follow up removal at home.
Kaiser has brought me and my family through many hard times and I don't think there is a better medical system out there to be had. |
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Tue May 05, 2009 6:53 am |
The coQ10 is sold over the counter in the vitamin section. I bought 20 mg strength bottle. I first saw it listed on some Eucerin lotion.,then the ingredient coQ10 started showing up on various lotions. It is around 5-7$ for a bottle of 90. I had used Retin A before and it made my skin SO flaky. I tried every lotion I could find. I don't want the SK on my face. I mix a gel(prick hole with pin) with Retin A and it it is amazing. Another miracle is the cream she prescribed for me, Ammonium Lactate Cream 12%. It says on tube it is for scaly skin. The SK on my back itches and this cream has softened some of them to the point that I can just scratch them and they come off(small ones). The pharmacy charges 15$ for the prescription tube and it is a BIG tube. I am more hopeful than I have ever been!!! I have strawberry blond hair and fair skin and it is sensitive skin too!! I didn't ask about strength to use on the peroxide as I am using this first and then using your method on what remains!1 I will ask her to recommend strength and pass info back to you. She did say protect surrounding skin. SK is heartbreaking and it seems like no one understands to pain and embarassment we suffer. I FINALLY found a Dr that cares and I will share all I can with you. I will be sure to ask her what ratio of parexide to use at first. Suzy |
_________________ natural strawberry blond hair, blue eyes,56,very fair skin, no wrinkles(yet) |
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Tue May 05, 2009 5:51 pm |
Suzy - Thanks for the info. I'm going to start experimenting with the CoQ10, mixing it with something from my arsenal of skin creams. Years ago, I had some Lac-Hydrin 12% which was very slow to work on my SKs and I got impatient and just had them burned off. I think it has lactic acid in it and is the same cream you mentioned. Please do keep us up to date with any new info from your dr. or from your own formulas - we are all learning a lot from this thread! |
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Tue May 05, 2009 7:45 pm |
Jax, you can be sure that I will share any info I get with you. My dermatologist has seen a lot of SK in this area of the South. The thing she stresses is go slow, be gentle with our skin and keep it soft and supple. I hope you are pleased with the Coq10 added to your moisture routine.I think with our experiences and knowledge combined, we can make some real progress in this area. I have made it my mission...Suzy |
_________________ natural strawberry blond hair, blue eyes,56,very fair skin, no wrinkles(yet) |
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Thu May 07, 2009 8:21 pm |
Peachie - After I started this thread I talked to three more Kasiser derms, and the outcome was not rosy at all, they simply did not care, except for one girl just out of med school. She gave me excellent advice about scar treatments. Even when I found on my own that glycolic acid and hydrogen peroxide treatments work so well on SK, and tried to share it with them thinking that they would be interested in helping other patients, but they successfully ignored my information.
Since then I switched my medical insurance, and no longer with Kaiser. I think Kaiser is good just in one case that would be emergency hospitalization since patients sent to non-Kaiser facilities, but those who need genuine health care advice are better off with other insurances that allow freedom of choice.
PS: The derm that I described in the beginning of the thread was by far the worst one On a positive side after that negative experience I realized that I was on my own, and was able to come up with SK treatment and in turn help other people in similar situation. And it has been one of my most rewarding experiences |
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Fri May 08, 2009 7:44 am |
Hello my friends. I went back to Derma. Thursday. She had read all of this thread and said that she knows the neglect and non concern that some Dr's have for SK. She said to tell you all that her heart goes out to you and what you have gone through. OK..Here goes..She said that our skin is the largest organ of our body. It suffers trauma and shock easily. She understands our desperation to get rid of this,BUT, we must be very careful. First time use 20% solution. We can always work up. Protect skin around SK with Vaseline. Have a solution of 1/4 cup baking soda mixed with 1 cup water to neutralize mixture if it even TOUCHES skin. Water will not stop the "acid" and it can penetrate deeply enough to do nerve damage. Just do one or two at a time and be patient. For the women on here..always dry bra area carefully. She has seen many SK that thrive in this area. She wishes that we were not driven to this extreme,but,she understands our desperation. DON'T spray on any area,use small brush, have soda water handy, and go S_L_O_W! I will see her in a month and she said she will help us all she can. This is acid we are working with and she can't stress enough to be careful.. Hope this has helped.. |
_________________ natural strawberry blond hair, blue eyes,56,very fair skin, no wrinkles(yet) |
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katsubean
New Member
Joined: 15 May 2009
Posts: 2
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Fri May 15, 2009 5:24 am |
Planti wrote: |
Disseminated Superficial Actinic Porokeratosis DSAP
It is inherited in a dominant fashion, so either mom or dad was spotted, unless they were seriously sun avoidant.
I have tried laser, Glycolic at 30%, Tazorac (a retinoid), azelaic acid 20%, salacylic acid 4% and have met people who have tried nitrogen freezing and IPL. I also inadvertently hit one on my chest with IPL, and it got darker so I used some lightening creams and my usual sun avoidance. Mostly nothing changes it, but laser (that was a woman who worked at the place I get my IPL, not sure of wavelength) and IPL made it more obvious for quite some time. Glycolic made it red and faded within weeks.
I have never tried Hydrogen Peroxide (H2O2) but expect it would not work, and likely would not cause much difference unless the skin barrier had been disrupted with lots of solvent first. And the problem is genetic and starts at the level of the basement membrane of the epithelial cells so the regrown skin will look the same. I am watching the genetic forums but it is not exactly deadly so not getting much research money.
Just don't want undiagnosed DSAP sufferers to knock themselves out with stuff that won't work. It is much more prevalent than the websites that indicate it is 'rare'. I spot it everywhere I go in the summer in my mainly white skinned community.
The other problem is that even with no more exposure to sun the skin gets thinner and more uneven with respect to pigmentation. My forearm skin, at 54, looks like a 90 year old's, mottled, shiny unpigmented and variously pigmented spots, crepe paper wrinkling. And it is so fragile that a simple scratch from the dog produces blood blisters. I stopped sunning at about 40. Take lots of Vitamin D. |
I have a ton of DSAP spots on my forearms and I have been searching for any new ideas on treating them.
I slather myself with vit e oil every night and 50 sunblock everyday. This helps with the texture. However I can't seem to find anything that will work to take away the redness.
Also has anyone tried a derma roller on DSAP spots? I'm wondering if it would help or just make things more red.
Much Thanks! |
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katsubean
New Member
Joined: 15 May 2009
Posts: 2
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Fri May 15, 2009 5:47 am |
Mishey wrote: |
Planti wrote: |
Just happened on this thread and will try some of the ideas for SKs.
I wonder if Jerriogg is still around? I have DSAP too, plus some SKs. Word is, as long as I have known and been looking (5 yrs) that nothing helps DSAP except staying out of the sun entirely, and then it just pales a bit but never goes away.
There may be some of you who find that these methods don't work on some spots. DSAP appears all of a sudden at around 30-40 and consists of multiple reddish to tan, flat rounded to ovoid spots usually on the lower legs and arms. They often look dry close up and have a characteristic edge to them. Sun exposure is associated but radiation can bring it on even in the sun avoidant. For some reason they usually are not found on the face. They can be found on the trunk but much much less often than the legs and arms.
I have found that irritating the damn things makes them more obvious, and they don't respond to anything less than removal down to the dermal layer, then they scar. Some hope for help from the newer psoriasis treatments but I have not heard of any definite successes.
A lot of dermatologists don't even diagnose them, they can look like actinic keratoses that are precancerous but they are histologically different and rarely become cancer.
Sorry for the long post but I just thought if people apply treatments to large areas and have some DSAP they may be disappointed by the worsened appearance and lack of response. |
So Planti are you saying that you tried the H2O2 on your DSAP and it didn't clear it up but made it worse? What does DSAP stand for? |
Hi Planti,
Hope you are still around. Just want to know if you have any luck with treating the DSAP. I am aware of all of the usual sun avoidance other standard care. My main problem with it is the redness. Wondering if there is anything you have found to help.
Thanks! |
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Sat May 16, 2009 2:18 am |
I've just finished spot treating my skin tags with the H2O2. I also saw, or felt some strange rough spots here and there and touched the H2O2 on them too. Just about everything I touched frosted white, so I guess I must have some SK that I didn't realise I had. I just ran my hand over the front of my body and touched anything that was raised. (Except what I know are moles)
I used a cotton covered toothpick.
So here's hoping. I'll give them all another going over tomorrow.
We'll see how they look from there before I decide if I should give them more treatments. |
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Sat May 16, 2009 6:44 am |
I don't know if we talk about emotions here,but,I would like to hear from anyone that would like to share with me. SK has affected my life dramatically.I am in my 50's and single. I have been single for several years. My EX made fun of my SK. Now, I am really hesitant to date. I have no SK on my face or neck,but, my back and shoulders have SK. Explaining SK to someone is difficult and I am afraid they will see me as repulsive. Does anyone else experience these feelings and how do you cope with them? Thank you...Suzy |
_________________ natural strawberry blond hair, blue eyes,56,very fair skin, no wrinkles(yet) |
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Sat May 16, 2009 7:05 am |
Suzi that's awful to be feeling like that. Men have no idea how their words can effect us, and permanently.
The good thing is you can get rid of those darn things now, and you'll be free of those inhibitions.
Have you started any treatments yet? |
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Sat May 16, 2009 7:57 am |
Hi mishey,yes I have gone to dermatoligist. She is really understanding,but, like it was said before,SK is not considered to be life threatening and is not a priority in research. I have had several removed. My SK's are small and flesh colored but I can feel them and I know they will spread faster than I can chase them:) I am using Retin A and coq10 to prevent them on face and neck. I thought wrinkles would be my mid life worry!! I am not vain,but, this is something I was not prepared for. Thank you for answering me. I just wondered if anyone else felt insecure about their self image because of SK. Suzy |
_________________ natural strawberry blond hair, blue eyes,56,very fair skin, no wrinkles(yet) |
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Mon May 18, 2009 12:47 pm |
suzyIQ - it is a problem that most of us ran into, e.g. SK starts spreading and seems to spread faster and faster if untreated, which is not comforting at all, while derms do not look into it seriously. Obviously those who post and read this thread have opposite opinion, and work hard to be SK-free. Would cosmetic appearance not bother us, we would not look into SK removal. SK stages differ from person to person, but the desire to get rid of it is the same. I did not have a severe case, but just looking how it might end up was pretty stressful, which prompted me to do whatever I could to resolve the problem.
The good part that you should be able to get your clear skin back! We have a number of happy ending stories and we are here to support each other |
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avinne
New Member
Joined: 19 May 2009
Posts: 2
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Tue May 19, 2009 7:06 am |
I wanted to jump in and let you know how the treatment is going for me.
I am 35, and have a few spots of SK on my face. I had a couple on my arm that the doc burned off and left a pretty good scar, but he wouldn't do the ones on my face. Probably a good thing.
The worst one is in the hairline by my ear, about 1 cm across, 2-3 mm high, mushroomed out and cauliflower-like. It has been there for probably 20 yrs, but has grown quite a bit in the last 5.
I have another that is almost as big, but barely raised on my chin. Very noticable, and it's starting to grow, so I wanted to do something about them. Like I said, the family doc wouldn't touch them on my face and recommended a dermatologist. The derm is hours away, and I never took time to go. I really wanted the SK gone so started looking on the internet. I thought they were moles, so started putting garlic on the big one to see if it would work, not much happened, except I stunk! I did more research and found out online I have SK instead of moles, then found this site.
Last week I got 35% peroxide from our local health food store, about 2 oz for $2.
Mon. pm I started on the large one in my hairline, and since the garlic had already done some damage, it started popping and fizzing. I got some peroxide on my fingers, and after a few minutes they started to burn, so people - be careful!
Tues pm, I put peroxide on the first one again, then I put some on the others on my face. The ones that had been there at least 15 yrs did not do much, so I scraped the skin a little and worked on it again. I had one on my nose that was maybe 1-2 yrs old, it fizzed right away. One on my cheek maybe 5 yrs old was slower, but started going without any scraping.
Wed pm, I had a big scab on the big SK that I pulled off and then treated again. The one on my chin had a watery scab I rubbed off, then treated, and the one on my nose and cheek had a small scab that easily came off and I treated them again.
Thursday pm, pretty much same as Wed. The big one is starting to get smaller, the one on my chin must be pretty deep, it looks nasty. I know it's about 20 yrs tho.
Friday same again.
Sat pm., the one on my nose is burning a little different, so I left it to heal. I think it's burned through. Treated the rest. There is one that was about 3 mm tall and wide by my other ear that is now about flat.
Sun, put 3% peroxide on my nose, and treated the rest with 35%. The one on my cheek is burning different, so will leave it to heal.
Monday pm, 3% on the 2 that are healing, and 35% on the rest, the big one I started on is now about 5-6 mm wide and maybe 1 mm high. I have hairs growing through it that are still there, but a lot lighter in color from the peroxide, but I can hide it well by styling my hair a little different. The one by my other ear is still there but flat. My chin is still pretty scabby and a little raised.
I'm very happy with the progress so far. I'm applying peroxide by dropper to a Q-tip, then dabbing peroxide on my SK being very careful not to drip or let any fall on my skin. I don't have very much skin around the SK that is damaged, just some and it's a little red and peeling a little. I have put make-up on the scabbed over SK on my face, no bandaids. |
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